Amy

Amy took part in The Big Sunflower Project in 2019. Below she writes about her reasons for taking part.

My name is Amy, I am currently studying Digital Photography at University of Chester.  At 16 I was diagnosed with centronuclear myopathy (CNM), Dynamin 2 (DNM2) mutation along with hypermobility.

I decided to take part in The Big Sunflower Project to be more involved in the community, as it is nice to have people that understand emotions and issues that go along with the condition. The sunflower project seemed like a great, proactive way to raise awareness about the condition that I myself and people I love have (people who I have only been able to meet through online community and pages that have been set up e.g. the sunflower project, CNM and myotubular page).

Documenting my sunflowers growth and creating little updates felt like almost a way to give something back to the amazing people that run the pages, websites and projects for our community. I wanted to take part in The Big Sunflower Project because without these pages I would not have been able to meet so many amazing people around the world and probably would have still felt very isolated and scared by my condition.