About

The Big Sunflower Project is an initiative of The Information Point for Centronuclear and Myotubular Myopathy. Both groups aim to raise awareness of rare neuromuscular conditions known as centronuclear and myotubular myopathy.

The Big Sunflower Project raises awareness by sending sunflower seeds to people who have never heard of the conditions and requesting photos in return. Each year the photos are posted online which again raises awareness of the conditions.

There is no charge for seeds or for the cost of postage, we do, however, welcome donations to ensure the future of the project and to enable seeds to be sent to as many people as possible each year.

If you would like to apply for sunflower seeds for The Big Sunflower Project 2020, please submit your request using the application form on this website.

One thought on “About

  1. What a beautiful idea! I’ve emailed you to see if you would like to partner with us for our forthcoming art exhibition on Vincent Van Gogh, because we wanted to fill the railway station with sunflowers and have the art growing up out of them. It would be just wonderful to have your organisation’s aims promoted through our sunflowers to give it all an extra layer of meaning. Really hope we can work together on this touching project!

    Liked by 2 people

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