The Big Sunflower Project 2019 (mid year report)

2019 is the ninth year of The Big Sunflower Project. This year seeds have been sent across the UK and to The Netherlands, Germany, Sweden, Lithuania and Germany. For the third time the project is being joined by people growing sunflowers in memory of Emil, who was diagnosed with myotubular myopathy and sadly passed away in 2016.  And for the first time sunflowers have been grown in Australia for George who has myotubular myopathy, meaning the project has received some beautiful sunflower photos this year already.

Sunflower grown in Australia.

About The Big Sunflower Project

The Big Sunflower Project is an initiative of The Information Point for Centronuclear and Myotubular Myopathy. The aim of the project is to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy, by sending seeds to people who have never heard of the conditions and requesting photos in return, which are shared in the Information Point newsletter and on the project social media pages, again raising awareness of centronuclear and myotubular myopathy.

Planting sunflower seeds.

How the project is funded

The Big Sunflower Project is only possible because of the kindness of those who support our work with donations, discounts and funding. Sunflower seeds for The Big Sunflower Project 2019 have been provided by Kings Seeds, who provided 300 packets of seeds at a large discount. Seeds have also be donated by people who grew sunflowers during the 2018 project and harvested the seeds – thank you Katrin, Mike and the University of Leicester Social Impact team. In addition the project has received a £200 donation from Chester West Voluntary Action.

Project map

283 places are currently plotted on the project map which can be viewed below. Click anywhere on the map to open it up and click a sunflower to learn about the people growing sunflowers in a particular location.  If you are growing sunflowers but cannot see yourself on the map, please ask to be added.


Information about how to grow sunflowers can be found on the project website.

And if you are  using your sunflower seeds for educational purposes, fundraising events or would like to raise awareness of centronuclear and myotubular myopathy at the place where you are growing your sunflowers, you can download flyers from the resources area of the website. You will also find resources for teaching children and to start conversations about equality and diversity.

Newly planted sunflowers,

Make a donation

There is no charge for project seeds or the cost of postage, the project does however, welcome donations to ensure the future of the project and to enable seeds to be sent to as many people as possible each year. If you have donated for your seeds, thank you. If you would like to donate, you can learn more about how to do this below.

Sunflowers being planted in Germany.

Further information

Further information about the project can be found on The Big Sunflower Project website and on social media, where photos can be shared using #TheBigSunflowerProject. Use #centronuclear, #centronuclearmyopathy, #myotubular and #myotubularmyopathy to help raise awareness of centronuclear and myotubular myopathy too.