A year in the life: 19 December 2018

Earlier this year, I decided to write about my sunflower growing year. It could have been a very dull series of posts but the UK had a fabulous hot summer, my sunflowers grew amazingly well, there was much to write about and many photos to share … I love it when a plan comes together.

To end my ‘year in the life’ posts I thought I would write a short review of the year and highlight a few of my favourite things from 2018 (soon you won’t be able to get away from reviews of the year, so I’m getting mine in first). If you haven’t seen it already, please also take a look at the project end of year report.

2018 was the eighth year of the project. The seeds that were sent to participants were purchased from Thompson and Morgan, at a large discounted price, with money donated to the project in 2017. Seed donations were also received from Mark Davies Seeds, Just Seed, The Real Seed Collection and L G Seeds.  Support such as this is crucial to the survival of the project and I really cannot say thank you enough to everyone for their generosity, which has enabled the project to continue as long as it has.

The aim of The Big Sunflower Project is to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy, so I was over the moon to have people once again growing sunflowers in memory of Emil, who was diagnosed with myotubular myopathy and passed away in 2016.  You can read more about Emil here on the project website.

Emil's birthday invite.

This year the project also welcomed the family and friends of Marius in Austria. An email arrived in early April requesting seeds, explaining that Marius was born in August 2017 and diagnosed with myotubular myopathy. The family wanted to grow sunflowers in the hope that Marius would see them when he  hopefully came home from hospital.

Marius and sunflowers.

Seeds from Austria.

They went on to grow sunflowers, take photos and save their sunflower seeds, which will now be distributed to participants in The Big Sunflower Project 2019. You can view photos of the sunflowers that were grown in Austria on the project Flickr page.

This year the NeuroMuscular Centre in Cheshire also participated and were enthusiastic supporters on social media. Based in Cheshire, the charity supports people across the UK and sometimes further afield, providing physiotherapy, training and employment to people with muscular dystrophy. I was delighted to have them take part and to be able to share their story on the project website.

Sunflower

In July, I attended the Myotubular Trust and Zusammen Stark! family conference in London for people affected by centronuclear and myotubular myopathy. You can read about the conference below.

It was amazing to hear about the incredible advances in research into centronuclear and myotubular myopathy but also really quite lovely to walk into the venue and see balloon sunflowers everywhere. Thank you Myotubular Trust and Zusammen Stark! it was a truly thoughtful thing to do and my little heart wanted to burst at the sight of them.

Balloon sunflower

Balloon sunflowers

Balloon sunflowers.

Finally, this year, I was so happy to have my old school, Oldfield Primary School in Chester, take part in the project.  The school is just a hop, skip and a jump from my childhood home. It is also where I went as a brownie and girl guide and this year my old guide leader, now a Governor at another primary school in Cheshire, also participated in the project with her school. It was particularly special to have both schools involved and to see how well their sunflowers grew.

Sunflower grown by pupil at Oldfield primary school.
Sunflowers grown at Westminster Primary School, Ellesmere Port.

So, just a few of my favourite things from The Big Sunflower Project 2018 but thank you to everyone who took part in the project this year.

Seed distribution for the 2019 project will begin in early 2019 and I look forward to growing sunflowers again with anyone who wants to join me then.