The Big Sunflower Project 2021

This time last year, I called time on the The Big Sunflower Project with a heavy heart. My little awareness project had got huge and the demand for seeds, applying for funding and distributing seeds all by myself, was at times overwhelming. However, as 2021 got underway, people began to contact me to say they still wanted to take part in the project and they were happy to buy their own seeds or plant seeds they had harvested. I could not have been more happy.

Sunflower and butterfly.
2021 was the eleventh year of The Big Sunflower Project. Participants old and new joined the project and some truly beautiful photos were shared on social media to raise awareness of centronuclear and myotubular myopathy.

Sunflowers grown in Chester.

If you took part in the project this year, thank you so very much, I hope you enjoyed growing your sunflowers as much I enjoyed looking at your photos and being part of the project community of sunflower growers. To date participants have joined the project from across the UK, Ireland, the Isle of Man, the USA, Costa Rica, Argentina, the Philippines, Australia, New Zealand, Germany, The Netherlands, France, Croatia, Hungary, Sweden, Austria, Lithuania, Greece, Poland and in a first for the project this year, the Middle East.

Sunflowers growing in Lubeck.

Raising awareness

The aim of The Big Sunflower Project is to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy. One of the ways the project does this is by sharing photos, another by sharing participants stories on the project website and on social media. If you have grown sunflowers with the project this year and would be willing to share your story to help raise awareness of centronuclear and myotubular myopathy, please get in touch. You can read stories from past projects below.

If you grew sunflowers this summer but have not shared any photos it is not too late and these can still be shared on the project social media channels.

If you would like to learn about centronuclear and myotubular myopathy, you can read about the conditions below.

The Big Sunflower Project 2022

Could you grow a sunflower to raise awareness of centronuclear and myotubular myopathy? Taking part  is easy.

1. Buy a packet of sunflower seeds.
2. Plant a seed in a sunny spot, water regularly and watch it grow.
3. Take a photo of your sunflower and share it on social media using #TheBigSunflowerProject.

If you have never grown a sunflower before but would like to give it a go, you can learn how below.

Sunflowers growing in Bawu.

Toni
December 2021

Further information

Want to learn more about The Big Sunflower Project? Further information about the project can be found on the project website and on the social media pages.

Sunflowers growing in Chester.

The Big Sunflower Project 2020 (end of year report)

2020 was the tenth year of The Big Sunflower Project with people taking part in the UK, the Netherlands, France, Germany, Poland, Sweden, Greece, the USA, Australia and the Philippines.

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As always schools and nurseries received seeds. Other recipients included home educating families, children learning from home due to coronavirus, schools that remained open to the children of key workers, NHS hospitals and medical centres, brownies, a horticultural society, a charity that supports people recovering from homelessness and addiction, an allotment project for children and adults with additional support needs, a charity which works with people who have learning disabilities and a residential home for older people with dementia. This year seeds and small plants were also given away in our local neighbourhood to spread a little happiness during a time in which happiness has been in short supply.

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Project map

This year 251 places were plotted on the project map which can be seen below – click a sunflower to learn more about the people growing sunflowers in that location.

In the news

The project received some lovely publicity over the last twelve months which can be read below and we are incredibly grateful to those who have taken the time to write about what we do.

We are also grateful to all the Clinical Commissioning Groups that promoted the project to their staff and on social media at the beginning of the year.

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The Blakemore Foundation

In August, we were delighted to learn that we were to receive a £100 donation from the Blakemore Foundation, a charitable trust established by the Blakemore family to support good causes across A.F. Blakemore’s trading area (including the SPAR trading area.) Funding such as this is crucial to the work of The Information Point and The Big Sunflower Project, so we are hugely grateful to the Blakemore Foundation for their support.

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Photos

Over 750 photos were received from 69 participants this year. Every photo received was posted on social media to raise awareness of centronuclear and myotubular myopathy and these can be viewed below.

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All photos received are shared on our website and social media pages and are really important to us, as they help raise awareness of the project and of centronuclear and myotubular myopathy. They also help evidence the impact of our work.

If you grew sunflowers this summer but have not yet sent photos it is not too late and we would still love to see these. Photos can be sent by email or shared on Facebook, Twitter or Instagram using #TheBigSunflowerProject.

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Harvesting sunflower seeds

After a sunflower has flowered, its seeds can be harvested for planting again the following year. A single seed planted in the spring can produce many seeds in the autumn and these can be extracted from the seed head once a sunflower has dried out. Want to try saving your own seeds? You can learn how here on the project website.

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Share your story

Each year we ask people who have taken part in The Big Sunflower Project to share their story. The stories help us to raise awareness of centronuclear and myotubular myopathy and again help when we apply for funding. You can read stories from previous projects below.

If you have grown sunflowers with the project this year and would be willing to write your story too, please get in touch.

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This year the project celebrated its 10th anniversary – it has been a very different year to the one anticipated but we hope if you took part, you enjoyed growing your sunflowers and that they brought a little sunshine into the lives of those who grew the sunflowers and those who saw the photos.

Further information

Further information about the project can be found on here on the project website and on the project social media pages.

The Big Sunflower Project 2020 (mid year report)

2020 is the tenth year of The Big Sunflower Project and a milestone event for the little project, which originally was only meant to last for one year.

Sunflowers growing in wellington boots.

Obviously, no one expected the coronavirus situation and in March seed distribution was suspended.  We tentatively re-started in April and during late April and early May, were able to get some final batches of seeds safely in the post. Recipients included children currently home from school, schools that remained open to the children of key workers, a charity that supports people recovering from homelessness and addiction, a specialist worker for the Early Help and Prevention Service, an allotment project for children and adults with additional support needs, Enable Scotland (a charity which works with people who have learning disabilities), a residential home for older people with dementia and a hospital caring for a child with myotubular myopathy.

Sunflowers growing at Westminster Primary school in Ellesmere Port.

Our intention at the beginning of the year had been to distribute 300 packets of seeds and we now know of over 290 people participating in the UK, on the Isle of Man, France, Greece, Germany, Sweden,  Australia and the Philippines, so we are feeling a tiny bit proud of ourselves for getting so close to our target at this difficult time. 238 places are currently plotted on the project map which can be viewed below. Click anywhere on the map to open it up and click a sunflower to learn about the people growing sunflowers in a particular location.  If you are growing sunflowers but cannot see yourself on the map, please ask to be added. As always, we wholeheartedly welcome anyone who grows sunflowers to take part in the project, even if they did not obtain their sunflower seeds from us.

In addition to posting seeds out, seeing as we had been thrown a curve ball, we decided to do a few things differently this year too.

Earlier in the year the project received a large donation of vegetable seeds. During the first three months of the year, these were sent together with sunflower seeds, to anyone who applied to the project and advised they had an allotment or stated they wanted seeds for a gardening club but from late April onwards, we began to give away our sunflower and vegetable seeds locally and we planted dwarf sunflowers, peas, cucumbers and runner beans and gave small plants away too.

Box containing free plants.

Secondly, we decided to send seeds to schools we knew were still open for the children of key workers.  We thought being a small person with all this chaos going on right now, together with not being able to be with your friends and watching your parents go off to work each day must be quite a scary time, so decided to send a few surprise packages to schools, in the hope it would bring some cheer, make the children feel a bit special and give them something to look forward to – hopefully staff and parents would get some enjoyment from seeing the sunflowers too. It has been very lovely to hear from some of the schools and other recipients that the seeds and plants have been well received

Jen and Holger planting sunflower seeds.

ZNM-Zusammenstark! e.v. 

This year the project is once again being joined by ZNM-Zusammenstark! e.v.  growing sunflowers in memory of Emil, who was diagnosed with myotubular myopathy and sadly passed away in 2016.  Founded in 2015, ZNM-Zusammenstark! e.v. is a German association for those affected by centronuclear and  myotubular myopathy. Visit their website to read what they have to say about being part of The Big Sunflower Project.

Jade bear at Tinsley Meadows Primary school watering his sunflowers.

In the news

The project has received some lovely publicity this year which can be read below and we are incredibly grateful to those who have taken the time to write about what we do.

Sunflowers growing at Spitalfields Crypt.

Resources

If you are  using your sunflower seeds for educational purposes, fundraising events or would like to raise awareness of centronuclear and myotubular myopathy at the place where you are growing your sunflowers, you can download flyers from the resources area of the website. You will also find resources for teaching children and to start conversations about equality and diversity.

Make a donation

The Big Sunflower Project is an initiative of The Information Point for Centronuclear and Myotubular Myopathy. The aim of the project is to raise awareness of the rare neuromuscular conditions known as centronuclear and myotubular myopathy, by sending seeds to people who have never heard of the conditions and requesting photos in return, which are shared in the Information Point newsletter and on the project social media pages, again raising awareness of centronuclear and myotubular myopathy. There is no charge for project seeds or the cost of postage, the project does however, welcome donations to ensure the future of the project and to enable seeds to be sent to as many people as possible each year. If you have donated for your seeds, thank you. If you would like to donate, you can learn more about how to do this below.

Our friends

This year project seeds have been donated by Thompson and Morgan and Tamar Organics. Seeds were also donated by Mike Rogers, Linda Fowler and Flower Power Lymo who grew sunflowers during the 2019 project and saved their seeds.

We are also grateful to everyone who has donated to The Big Sunflower Project since 2011, enabling us to celebrate our 10th anniversary.  You can read about these people below.

Looking forward to seeing everyone’s sunflower photos over the summer. Until then  stay safe everyone.

Sunflowers planted in Birkenhead.

Further information

Further information about the project can be found on The Big Sunflower Project website and on social media, where photos can be shared using #TheBigSunflowerProject. Use #centronuclear, #centronuclearmyopathy, #myotubular and #myotubularmyopathy to help raise awareness of centronuclear and myotubular myopathy too.